The Child Neurology Foundation (CNF), a national nonprofit working to ensure optimal care for children living with neurological diseases, held A Heroes Dinner benefit Nov 8, to honor John and Laurian Scott. The Scotts were awarded the “Hero of Promise Award” for their contributions to the field of child neurology, which paved the way for discovery of a rare gene associated with Brown-Vialetto-Van-Laere (BVVL), the disease that resulted in the deaths of their young children, Thisbe and Noah.
Proceeds from the event will benefit CNF, including the establishment of the Foundation Award for researchers doing work in the area of neurological diseases. In support of the foundation’s ongoing work, Don and Linda Bailey of A Little Help Foundation pledged a yearly donation to CNF of $ 100,000 for the next five years.
More than 200 guests attended the gala, held at the Four Seasons Los Angeles in Beverly Hills. Emcee for the evening was actress Wendie Malick, and the night included cocktails, a silent auction and music from guitarist Billy McLaughlin. Guest speakers included acclaimed child neurologists W. Donald Shields, M.D., CNF board president and Kenneth Swaiman. M.D., founder of CNF; UCLA Steve Tisch BrainSPORT Program Director Chris Giza, M.D. and behavioral child neurologist Shafali Spurling Jeste, M.D. from UCLA’s Semel Institute. Acting Executive Director of CNF, Amy Brin Miller, presented the “Hero of Promise Award” to the Scotts alongside their daughter, Aslan Williams. The couple’s heartfelt acceptance speeches and tribute video added on to an inspiring evening.