People, places and information of interest to the special-needs community in L.A.
How Research Can Help Parents of Children with Autism Prepare for the Future
When I became a parent, my anxiety grew astronomically. Minutes after the births of my sons, I felt entirely responsible for the fate of these little human beings. I was the Earth and they were seemingly the Sun around which my every decision revolved. Parental worry is a common problem and it can take a […]
Embracing the Quiet Power of the ‘Lemur Mom’
It was a Saturday night, and my husband and I were determined to follow through on our plans for a date night. We couldn’t even remember the last time we’d had one. So why, when the point of date night is to get away from the kids, would we elect to go to a one-woman […]
When Autism and Sleep Issues Collide
New parents expect to be sleep deprived – but they expect the sleepless nights to eventually end. For parents of children with autism, though, they don’t always. A study in the March issue of the journal Pediatrics found that children with autism are more than twice as likely to have sleep problems as those without […]
Kids Gym Provides Inclusion for Children – And its Owners
When Howard Luck was graduating from high school, his counselor told him that college would be way too demanding and that he should limit his career aspirations to bagging groceries at a local market. Howard has a variety of learning differences and had been in special education for much of his time in school. He […]
Despite Fire Devastation, Shemesh Enterprises Unique Culinary Program Continues
In the path of the Woolsey Fire that devastated our region in November was a unique occupational program, business and social enterprise that, thankfully, is already rising from the ashes. Shemesh Enterprises is many things to many people. To the farm fellows who work there – all young adults with disabilities – it is a […]
Social and Job Skills are the Focus of Center4SpecialNeeds Programs
The Center4SpecialNeeds, a nonprofit dedicated to providing resources, education and supports for children with developmental disabilities and their families, has sessions of two popular programs beginning in January. Kids/Teens Clubs offer activities designed to help improve children’s social skills and build self-esteem and confidence. The groups are co-ed and organized by age and abilities. Led […]
Exceptional Minds Launches 2019 Virtual Private Tutoring Program
Exceptional Minds, a nonprofit academy and working studio for adults on the autism spectrum who are pursuing careers in animation and visual effects (VFX), has launched a Virtual Private Tutoring (VPT) program. VPT is designed to offer the academy’s specialized training to students wherever they may be. The three-year full-time Exceptional Minds program includes technical and professional […]
Course Offers Special-Needs Moms a Mindful Return to Work
Having a baby is a transformative experience, bringing intense physical changes and engulfing emotional ones due to the pending needs of this new human. The mind races from nesting to nursing to concern over who will care for this bundle of joy once parents return to work. These concerns are heightened when a child is […]
Air Travel Practice For Kids With Autism
Faced with a challenging task, most of us would like a practice run before we tackle the real thing. Just in time for summer vacation, Open Sky for Autism offers a bit of practice for people with autism who might find air travel difficult. The event takes place Dec. 8 at Air Hollywood, a unique […]
Defying Gravity and Disabilities with iFLY
Who hasn’t imagined what it would be like to fly? To break free of the bonds of Earth and float upward? The folks at iFLY at Universal Studios CityWalk have been making that happen for folks for more than a decade. For the past year, they’ve been flying those who not only want to overcome […]
L.A. Found Program Helps Locate Missing Persons with Disabilities or Dementia
Almost half of children with autism will at some point engage in wandering behavior – putting their lives at risk and their families and caregivers through a terrible ordeal even if they are safely found. One-third of all people in California with autism live in L.A. County, according to the Autism Society of Los Angeles. […]
Simple Questionnaire Helps Spot GI Problems in Kids with Autism
Children on the autism spectrum are four times more likely than other children are to have a gastrointestinal (GI) disorder such as constipation, diarrhea or reflux disease. GI trouble can cause problem behaviors such as anger and aggression, but can be tough to detect in kids on the spectrum. According to a study reported Oct. […]
USC Seeks Help with Studies of Assistive Robots
USC researchers are looking for families to help with two studies they are conducting to find ways that robotics technology might benefit children on the autism spectrum – or those with other disabilities. The first study looks at ways that robots might help promote development in infants with or at risk for Autism Spectrum Disorders. […]
Parental Love Wins in ‘Far From the Tree’
As parents, we hold grand dreams for our children – even while they are still in utero – but these dreams can become hindrances when they do not fit the people our children actually become. The new documentary film “Far From the Tree” explores families who have children with wildly different realities – autism, Down […]
Angel City Games Bring Connections and Community to Athletes with Disabilities
There are three things L.A. dad Clayton Frech wants you to know about the Angel City Games – which will take place June 21-24 this year on the UCLA campus. This is not the Special Olympics. Athletes can participate for free. There is so much more going on here than just sports. Frech founded the […]
An Autism Awareness Month Update
April is Autism Awareness Month, so we checked in with Gary Feldman, M.D., medical director of the Stramski Children’s Developmental Center at Miller Children’s & Women’s Hospital Long Beach, for an update on research, diagnosis and treatment. What’s going on in the field of autism research now that makes you feel most optimistic? Probably two […]
Local Kids Help Write and Illustrate Anti-Bullying Book
“I looked down inside my heart for friendship and love …” “Try not to let mean words get to you; they’re meaningless and a waste of energy. Don’t let bad people touch your heart.” “… if you really want to be happy, be kind, have a lot of friends, and follow your heart.” “When I […]
A New ‘Army’ of Chess Players
Children of all ages often yearn to have control over something in their lives, whether that’s what to eat for breakfast or what to wear to school. Kids on the autism spectrum, and those who have ADHD, also yearn for social connections. Kids To Kings, a chess tutoring program, uses the game to transform children […]
A Unique Academy Helps Kids on the Spectrum Transition to Adulthood
When you imagine the future for your child on the autism spectrum, do you imagine her or him using computer guided tools to create precision metal parts for aerospace companies? Maybe you should. In 2013, an organization called the Uniquely Abled Project sought to find out what people with developmental disabilities were good at. How […]
For Parents of Teens With Autism, Optimism Buffers Stress
The fact that mothers of teens experience stress is no surprise to anyone who has parented – or even met – a teen. The fact that moms of teens who are on the autism spectrum or have intellectual disabilities face more stress than their peers with typically developing teens is also no great surprise. Studies […]
For Jewish Kids With Disabilities, a New Learning Option
Chaya Chazanow and Sarah R’bibo have a lot in common. They are moms, they have kindergarten-age children with disabilities, they are Jewish – and they found what L.A. public schools were offering their kids just wasn’t enough. “It was always a fight to get what he needed,” Chazanow says of her 5-year-old son, who was […]
Kid Podcast ‘Brains On!’ Explores Down Syndrome
What do your kids know about Down syndrome? How about your kids’ friends and classmates? A great, age-appropriate way for them to learn more is via the “Brains On!” podcast produced by American Public Media – with writing and reporting from L.A.’s own Sanden Totten, formerly a science reporter at public radio station KPCC. In […]
Robotics Startup Creates Companion Helpers for Kids
In a bright co-working space in a building in Old Pasadena are the offices of a startup robotics and AI company. The scientists, engineers, artists and designers there have added a unique feature to their product-development lab: a playroom. But they aren’t just playing. They are working to change the lives of children – including […]
Dance/Movement Therapy Helps Kids With Autism Connect
The 5-year-old girl, diagnosed with autism, wasn’t used to connecting with people. She didn’t speak, made little eye contact and showed little physical awareness of others. She would sit near, even very close, to people without acknowledging them. Then Lori Baudino took her on a journey. Baudino, a Westchester-based clinical psychologist and dance/movement therapist, says […]
New Research and a Tourette Syndrome Update
A research team led by Massachusetts General Hospital, UCLA and the Tourette Association of America announced June 21 that it had identified rare mutations in two genes that significantly increase the risk for Tourette syndrome. The neurodevelopmental disorder effects as many as one in 160 children in the U.S. For an update on Tourette, we […]
Families Find Freedom to Splash at CSUN’s Center for Achievement
Kids and water can be a natural recipe for fun, but parents sometimes struggle to find a comfortable and safe swim environment for children with different abilities. An adaptive aquatics program at Cal State Northridge fills this need – and offers valuable experience for future occupational and physical therapists. At CSUN’s Center of Achievement, children […]
Inclusive LA: Summer Camp for All Abilities
Christmas comes for two weeks every summer for 12-year-old Makenna Ito and her sister Lianne, 7. That’s when the girls, both born with a rare disorder called Cockayne syndrome, attend a special camp that brightens their lives. “Camp is a vacation for them. It’s their Christmas,” says their mom, Noreen, a fourth-grade teacher in Redondo Beach. Though both sisters are non-verbal, it’s clear that Makenna knows when they’re driving to camp. “She raises her hands in […]
Learning About Rancho History – and Service Dogs!
If your family is headed to one of the monthly Creation Station art workshops or other family events at Rancho Los Cerritos (4600 Virginia Rd., Long Beach; www.rancholoscerritos.org), keep an eye out for Marcia Harris and her canine companion. A longtime volunteer at the rancho, Harris also raises service dogs. Harris began volunteering at the […]
Out, About and Inclusive In L.A.
There was a time when “accessible” meant someone with a disability could get in the front door, and maybe up to the second floor – and after that they were on their own. These days, accessibility goes way beyond that, and many L.A. attractions are making it part of their mission. “Accessibility is more than […]
Disability In L.A.’s Multicultural Melting Pot
Visit the website of any of the county’s seven regional centers and a drop-down tab offers a list of more than 100 languages – from Afrikaans to Zulu – to help families connect with opportunities, information and services for those with disabilities. In a county as large and diverse as ours, this is hardly surprising. […]
Doc Talk: Tracking Progress Against Autism
Autism spectrum disorder is now estimated to impact one in every 68 children in the U.S. and anyone not affected by autism likely knows someone who is. Researchers have been working for decades to unlock its causes and find effective treatment. At the forefront of these efforts is the Center for Autism Research and Treatment […]
Helping Kids With Autism Find Work
Joanne Lara sees too much of what she calls the “school-to-couch” model. “Fifty thousand kids a year in this country are graduating high school with autism, with no place to go,” says the executive director of Autism Works Now (AWN), an innovative nonprofit that teaches workplace-readiness skills. They end up on their parents’ couch […]
Inclusive Pageant Spotlights Girls of All Abilities
Many girls dream of wearing a crown and being “queen” for a day, and the California Miss Amazing pageant gives girls of all abilities that chance. The day includes all the usual pageant pomp, from formalwear and interviews to tiaras and trophies, but the beauty here is more than skin deep. “One of the main […]
ABLE Plans Let Those With Disabilities Set Financial Goals
For most of us who would like to save up for something – a new computer, a college class, a trip or even retirement – all we need to do to get started is to open a bank account or take advantage of a retirement or college savings plan. Most people with disabilities don’t have […]
The Second City Launches Courses for Kids With Autism
The Second City – which has locations in Chicago, Toronto and Hollywood – has been a launching pad for theater and comedy talent for decades. Steve Carell, Stephen Colbert and Tina Fey are some of the institution’s more recent alumni. The venue also offers kids comedy, acting and writing classes. And this month, for the […]
Step Out to Raise Funds for UCPLA
How many steps do you take per day? Do you have 10,000 in you? Find out, get fit and raise funds and awareness for individuals with cerebral palsy during the “Out & About With UCPLA” fitness challenge Oct. 3-28. The money you raise will help purchase equipment such as adaptable tricycles and adaptable beach wheelchairs […]
Matt Asner Becomes Vice President of Development For Autism Society of America
Matt Asner will join The Autism Society as National Vice President of Development, Autism Society President and CEO Scott Badesch announced Aug. 23. “We are thrilled to have Matt as part of the Autism Society family. His passion, energy and wonderful commitment to helping give all diagnosed with autism the maximum opportunities to reach their […]
Deaf Son’s Need Inspires Swim Shirt Company
Cole Sherman is profoundly deaf, has cochlear implants and loves to swim. “My son, he’s a water baby,” says Cole’s dad, Eric. For many years, water and the processors that implant users wear outside the body just didn’t mix. But in 2012, when Cole was 7, he got his first set of waterproof processors. The […]
Pam Lyn King: Coaching From the Heart
Pam Lyn King knows first hand what life is like for a special-needs family. Her younger sister, Kristol, was born with Down syndrome and autism. When Kristol died three years ago at age 20, King felt a profound void that she wasn’t sure how to fill. Landing a new job as an administrative specialist in […]
Granada Hills Students Create Art for Iditarod Mushers
The Iditarod Trail Sled Dog Race, dubbed the Last Great Race on Earth, is finally over and a winner has been declared. Musher Dallas Seavey is celebrating his win of the strenuous 1,000 mile race across Alaska that ended in Nome, Alaska in the early hours of March 15. Competitors are still finishing the long […]
Putting People With Autism To Work, Now
Each Thursday evening six young adults gather around a large table in an office off Ventura and Reseda boulevards and work to hone their employment skills. Because these individuals have autism, their chances of finding meaningful employment aren’t great. While 50,000 18-22-year-olds with autism graduate from public schools in the U.S. each year, the employment […]
Keeping Bloodhounds On the Scent of Missing Kids
Around half of all children on the autism spectrum will wander toward something that interests them, or bolt away from something that is bothersome. And because they have little sense of danger, this wandering can take them away from their caregivers and into unsafe situations. These children often go missing, and according to the National […]
Animation Contests Seeks Artists With Special Needs
L.A.-based Flydra Creative is an animation studio launched by a group of young up-and-coming animators. They’ve worked at places like Cartoon Network, studied cinematic arts at USC, been YouTube sensations and won awards. Now they want to give other young animators – animators of all abilities – a shot at seeing their ideas for a […]
Down Syndrome Stories That Will Make You Smile
When Andrea Knauss gave birth to her third daughter, Anna, 25 years ago, a nurse came into her hospital room and told her, “God has a big job for you!” The hospital photographer told her, “I guess you don’t want pictures of your baby, do you.” Anna was born with Down syndrome, and the hospital […]
Pairing Special Needs Families With Quality Providers
Need a restaurant recommendation? Try Yelp. A plumber? Angie’s List. And if you’re looking for a reliable service provider for someone with special needs, you can turn to Love My Provider (www.lovemyprovider.com), a fee-free website specializing in therapeutic services such as Applied Behavior Analysis; occupational, physical and speech therapy; summer camps and day programs. The […]
USC Telehealth Offers Free Help For Special-Needs Caregivers
Mary Ann Frattarole thinks it was early 2012 when she started getting desperate calls from parents and caregivers of children and adults with special needs. “I got some heart-wrenching calls from parents that had a special-needs child,” she says, including one mom who also had a husband with a disability for whom she was the […]
A Conference To Talk About Typing
Larry Bissonnette and Tracy Thresher both have limited speech due to autism, and when they were growing up, this meant they were labeled “retarded” and excluded from regular education. But their lives were turned around when, as adults, each learned to communicate by typing. Bissonnette, 52, and Thresher, 42, eventually embarked on a world tour […]
For Autism Initiative, Sesame Street Looks to Our Neighborhood
TV’s “Sesame Street” has long been populated with flightless birds, singing frogs, cuddly monsters and children of all sorts. And as the number of children diagnosed on the autism spectrum continues to grow in the world at large, they are coming to Sesame Street as well. To help out with the “Sesame Street and Autism: […]
This Holiday Shopping Keeps Vacation Dreams Afloat
Since 2006, Autism on the Seas has organized and staffed vacations (on cruises and at resorts on land) for families with children and adults with a variety of special needs – from autism to Down syndrome, cerebral palsy and other types of challenges. Now the organization has launched a nonprofit arm that will help fund […]
13-year-old Chef Cooks With Food Greats at Autism Speaks Gala
By the time Chase Bailey was 10, he was hooked on cooking shows. He discussed best methods for caramelizing onions with his mom and filled the family DVR with recipes for pizzas baked in brick ovens and tortillas filled with mahi mahi and mango-radish salsa. At 11, he started his own cooking blog, followed by […]
National TACA Autism Conference Offers Hope and Help to Affected Families
Autism is the fastest growing serious developmental disability in the United States, with 1 in 68 children currently affected with the disorder. For these families, identifying and paying for the help they need to get their child on the road to recovery is extremely daunting. That’s where Talk About Curing Autism (TACA), a national nonprofit […]
New Online Autism Training For Babysitters Available
All parents want their child’s babysitters to be well prepared – able to keep their child entertained, handle the after-school or bedtime routine and deal with whatever challenges or emergencies might come up. For parents of children on the autism spectrum, there’s a new online tool available to help prepare sitters for the unique challenge […]
Help Group Summit Focuses on Autism, Learning Disabilities and ADHD
A two-day conference featuring leading experts in research and best practices in the assessment and treatment of autism, learning disabilities and ADHD is set for Oct. 23 and 24 at the Skirball Cultural Center in Los Angeles. The Help Group’s Summit 2015 is designed for educators, clinicians/therapists and parents. Speakers include experts from UCLA, UC […]
DEAFestival 2015 Comes to Grand Park
The 17th annual DEAFestival, a free daylong family event offering resources, entertainment and community building, will take place at Los Angeles City Hall and Grand Park (200 N. Spring St., L.A.) from noon-4 p.m. Oct. 3. The event will feature a deaf talent show, a T-shirt design contest, a fashion show, information booths, art workshops, […]
Summer@ETTA Gets An ‘Official’ Visit
Last week a number of local elected officials visited Summer@ETTA, ETTA’s specialized summer program for individuals with disabilities. ETTA provides a full spectrum of services for adults with special needs. ETTA serves people with developmental disabilities and their families, with services including residential housing, case management, employment training and placement, educational services and social services.
A Boy and His Dog Share Love and Therapy
Eight-year-old Daron, of Van Nuys, has a tight knit family. They have been through a lot together. Daron has cerebral palsy and needs a lot of support, but his parents, Hagop and Armine, and his older sister, Ani, are devoted to him. They will do just about anything to make Daron smile. That is why […]
ETTA Expands Day Program Offerings for Adults with Intellectual and Developmental Disabilities
ETTA’s Isak Boruchin Adult Day Program opened in September with three clients, and has exceeded expectations by growing to 14 clients in the first year. The program provides safe, meaningful and purposeful volunteering, job development, skill building, and recreation activities for adults with disabilities at sites within their local community. That growth will continue, as […]
Special Needs Conference Focuses On Balance For Families
For Navah Paskowitz, “Bringing Balance,” the theme of the conference she is organizing for parents and siblings of children with special needs, is personal. “It really came out of my own family,” Paskowitz says. “We have a heavy load, my husband and I.” Paskowitz, executive director of corporate development and program director of The Friendship […]
PCDA Hosts A Taste of Summer: Rosé Soiree July 22
Professional Child Development Associates (PCDA), a nonprofit organization that offers a range of multidisciplinary screening, evaluation, therapy and specialized services for children and young adults with special needs, is hosting A Taste of Summer: Rosé Soiree at 6:30 p.m. July 22. Guests are invited to enjoy wine and food selections, music and mingling at a […]
Angel City Games Bring Adaptive Sport To L.A.
Ezra Frech, a Sports Illustrated SportsKid of the Year nominee in 2014, was born with no left knee or shin bone and only one finger on his left hand. And though he had his leg amputated below the knee at age 2 ½, nothing has slowed him down. When his leg was amputated, doctors were […]
Jennifer Jones: Raising Awareness for Kids With Special Needs
Jennifer Jones never thought of herself as a community activist, but when her 15-year-old son, Dylan, was diagnosed with Autism Spectrum Disorder 11 years ago, Jones’ course in life took a profound turn. The mom of two was working as a graphic and product designer and first became involved with Autism Speaks as a parent […]
L.A. to Host 2015 Special Olympics World Games
Los Angeles will play host to as many as half a million people this summer as we welcome athletes and fans from all over the world for the 14th Special Olympic World Games, taking place July 25-Aug. 2. Seven-thousand athletes with intellectual disabilities, coached by 3,000 coaches, will compete in 25 sports at all different […]
Temple Grandin to Appear at Club Nokia
One of the rock stars of the special needs world will take the stage at Club Nokia May 20 – along with a host of musical, celebrity and other guests – to raise awareness about the lack of jobs for young adults on the spectrum, and to benefit a new pilot program designed to help. […]
Breaking the Sound Barrier for Children Born Deaf
Almost immediately after she was born, it became apparent that Angelica Lopez was deaf. Her parents, Julie and Santos, learned sign language and started making the heartbreaking, but necessary, adjustments to their daughter’s special needs. Last summer, they learned of a device called an auditory brainstem implant (ABI), still in the testing phase, that might […]
UCLA Researchers Hope to Make Earlier Autism Detection Possible
Early detection is the key to helping children on the autism spectrum realize their full potential. Experts tend to agree that autism can be reliably diagnosed at age 3, when symptoms are present. Infants’ behavior is much more limited, making earlier detection a challenge, but researchers at UCLA are hoping to learn enough to change […]
Conference Showcases Neurodevelopmental Treatment Models For Special Needs
Parents can learn new ways to support children with neurodevelopmental differences at “The Power and Promise of Neurodevelopmental Approaches” March 13-15. The conference is hosted by the Profectum Foundation, a group of parents and practitioners dedicated to training and research. “Our hope is to bring world-class researchers to the conference and show parents and professionals […]
Children’s Hospital Los Angeles Studying Tummy Troubles and Autism
Research has shown that children on the autism spectrum experience more, and more severe, stomach problems such as constipation and bloating than other children their age do. If your child is one of them, you might be interested in a study being conducted by the special needs researchers at the Boone Fetter Clinic at Children’s […]
Brain Training Technique Holds Promise For Kids With Special Needs
Using three short learning sessions with hour-long breaks in between could help children with fragile X syndrome remember material as well as typically developing children, according to neurobiologists from UC Irvine. A genetic condition, fragile X causes intellectual and developmental disabilities, and is associated with autism. People with fragile X typically struggle learning new skills […]
Brain Balance of Brentwood Now Open
Nothing is more painful than to watch your child struggle. Difficulties in school, trouble making friends, tantrums and meltdowns are tough to observe, especially when you know that, underneath it all, you have a great kid. At the new Brain Balance Achievement Center of Brentwood, professionals work to address these challenges facing kids with special needs […]
Young Artists Pitch In On Vintage Mural
Once upon a time, driving down Whitsett Avenue in North Hollywood meant a trip through orchards filled with orange trees, with the occasional billboard adding color and excitement. The orange groves are long gone, and for years the stretch of Whitsett between Sherman Way and Saticoy became an area of blight. A lengthy community clean-up […]
Stepping Up To the Plate For People With Autism
Danny Gott is 21 and has loved farm animals since he was a little boy. Danny also has autism. In honor of their special son, Danny’s parents, Cathy Gott and Jim Gott – former pitcher for the Los Angeles Dodgers and current pitching coach for the Anaheim Angels – founded Danny’s Farm in 2007. The […]
Local Scout Stands Tall Despite Challenges
Spencer Gates, a high school senior, has a condition that makes it difficult for him to walk more than a few steps, but he didn’t let that stop him from running with his passion for helping the community through Boy Scouts. The Boy Scouts of America, Los Angeles Area Council (LAAC) serves more than 13,000 […]
Pujols Steps to the Plate for Special Needs
Albert Pujols has left an indelible mark on the game of baseball. Over the past 13 years, first with the St. Louis Cardinals and now with the Los Angeles Angels, Pujols has been one of the top hitters in the game and among its best all-around players. His two World Series rings – earned with […]
Kole Kodimer: A Westhills Champion
A baseball league for kids with special needs that started as an 11-year-old boy’s Bar Mitzvah project has, in just two short years, developed into a family and community passion. Guaranteed to make you smile, the Westhills Champions baseball league has become a point of community pride. The athletes, whose physical and mental limitations vary, […]
Santa Clarita To Serve as Special Olympics World Games 2015 Host Town
The City of Santa Clarita has been officially selected as a Host Town for the Special Olympics 2015 World Summer Games. Before the games begin on July 25, 2015, more than 7,000 athletes from 177 countries will be welcomed to Southern California through the “Host Town” program, which includes 100 communities from San Luis Obispo […]
Steve Everett: Power(ful) Soccer Role Model
Steve Everett plays and promotes power soccer, where adults and kids play together from their power wheelchairs, and learn powerful lessons. by Christina Elston When Steve Everett talks about the sport of power soccer, played in power wheelchairs, he makes it sound fun. “We have these guards on the front of our chairs. They almost […]